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DMD Disease: Hundreds of children and parents were seen pleading with the government at Delhi’s Jantar Mantar. These children are suffering from DMD (hereditary rare muscular disease). This is a disease of the muscles in which the weakness exceeds the calf and affects the whole body and the child is not able to do any work by himself. ‘Papa save us, we also want to live’ in the hands of these children. There were posters like ‘We children have only one demand, life donation-life donation’. All these children want to live like ordinary children. But there is no medicine available in the country for this disease. The medicine available abroad is very expensive.
There is also a lack of awareness and research about this disease in the country. Initially the parents of the child suffering from this disease do not know about this disease, initially the child remains normal for three years, but after that the symptoms of DMD start appearing and gradually he becomes helpless in walking. . In the absence of medicine, they die between the age of 13 to 19 years. Children from Bihar and Jharkhand were also included in those who appealed to the central government.
Parents along with their children from many districts including Muzaffarpur, Patna, Saharsa of Bihar were trying to draw the attention of the government towards themselves with posters in their hands, so that they can get life. The parents’ complaint is also with the government, society and the media. Because no one is listening to them. Their children are dying prematurely, but no one is paying attention to them.
All the parents of Bihari including Ram Kumar, Surendra Pratap, Pooja who reached here demand from the government that the government should make arrangements for the treatment of their children. Ramgopal Sharma says that the government says that children are the future of the country, but unfortunately this future is not reaching even in youth. The Prime Minister had met the children suffering from DMD in Solan. A ray of hope had arisen in their mind, but till now nothing has happened in this regard. That’s why there is a demand from the government that their children should also get life, for this the government should also take care of the children suffering from DMD.
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